Dwarfism & Little
People Resources
940
types of dwarfism and dysphasia listed
Association
para las Deficiencias que afectan al Crecimiento y al Desarrollo (ADAC)
Association
Belge des Personnes de Petite Taille Little People of
Belgium. We speak in three languages : French, English, and Nederland.
Our first subject is achondroplasia.
Association for
People of Short Stature in Sweden (APSSS)
Association Quebecoise
des Personnes de Petite Taille Quebec's Association of
Persons of Short Stature. L'Association Quebecoise des Personnes de Petite
Taille regroups les personnes qui ont le nanisme et/ou leurs parents, de
meme que toute personne interessee a soutenir la cause. L'organisme a ete
fonde en 1976, sous un autre nom, par un groupe de personnes de petite
taille. The Quebec's Association of Persons of Short Stature regroups people
who have dwarfism and/or their parents, as well as everyone interested
to support the cause. The organization was founded in 1976, under another
name, by people of short stature.
Billy Barty
The Billy Barty Foundation is the only organization supporting those affected
by the more than 200 forms of dwarfism. Besides providing much needed support,
his organization address social, medical and scholarship needs.
Camp Little
People is a camping experience for those of short stature
and their families who love the outdoors. By providing a physically-challenged
accessible camping facility, children of short stature can experience a
weekend in nature within an accessible and healthy environment. Camp Little
People provides an opportunity for individuals to spend quality time together
with friends and family. The camp provides opportunities to meet others
with the common love of the outdoors and to share experiences, concerns
and stories with other short stature counselors or with parents of short
stature children. Lastly, Camp Little People provides a weekend of fun
and relaxation in the outdoors
Canadian
Half-Pints A miniature basketball team featuring a "Don't
Tease" program.
DHR - De Handikappades
Riksförbund Handicap organization in Sweden.
Diastrophic
Dysplasia Help and resources for one of the most common
forms of dwarfism. Page created by Vita Gagne.
Dwarf
Athletic Association of America (DAAA) was
formed in 1985 to develop, promote and provide quality amateur level athletic
opportunities for Dwarf athletes in the United States . Their mission:
"To encourage people with dwarfism to participate in sports regardless
of their level of skills
Dwarf
Athletic Association UK(DAA-UK)
To promote and develop sport for persons of restricted growth and to enable
them to enter and compete in sport on an equal footing. To promote recreational
sport for the the benefit of any persons of restricted growth. To promote
competitive sport for dwarf athletes both in the Uk and internationally.
To provide opportunities for dwarf athletes to train for and compete in
the World Dwarf Games, the Paralympic and the Olympic games.
Dwarfism
this site serves as a resource for those affected with dwarfism and their
families
Dwarfism
Listserv interactive discussion group for
issues related to Dwarfism, distributed by private e-mail.
Dwarfism.Org
Centralized Internet Resource for Dwarfism
Greenberg
Center for Skeletal Dysplasias John
Hopkins Medical Center
International Growth Federation
Dwarf Helpline (800) 24-DWARF. Represents individuals from a variety of
companies interested in growth disorders.
Little
People of America (LPA) assist
dwarfs with their physical and developmental concerns resulting from short
stature
Little People of
Germany Wer sind wir? Es war einmal... So fängt
normalerweise jede Geschichte an, die mit Kleinwüchsigen (im Volksmund
"Zwerge" oder ähnliches) zu tun hat. Gegen diese Mystifizierung von
"kurzen" Menschen kämpfen wir seit über 25 Jahren mit inzwischen
über 400 aktiven Mitgliedern. Genau 1968 fanden sich die Ersten, die
sich nicht mit den bestehenden Vorurteilen und Benachteiligungen abfinden
wollten und sich das Ziel setzten, die Öffentlichkeit über unsere
"Normalität" zu informieren. Sie gründeten den "Club der Kleinen"
der nach mehreren Namensänderungen zum "Bundesselbsthilfeverband Kleinwüchsiger
Menschen e.V." geworden ist.
Little People of
Norway ( NiK ) Norsk Interesseforening for Kortvokste
ble stiftet på Frambu i november 1983. Foreningen er åpen for
kortvokste, samt foreldre, søsken og barn til kortvokste. Andre
kan delta som støttemedlemmer. Man regner med at det i Norge er
cirka 500 personer med diagnosen kortvokst. Medisinsk defineres kortvoksthet
som legemshøyde under 150 cm.
Little People of Ontario
is a non-profit organization, incorporated in the Province of Ontario,
on October 29, 1987. We are concerned with the need for people of small
stature to become useful members of society through education, employment
and social adjustment, and to focus public attention to the fact that the
magnitude of any physical limitation is a function of attitude of both
the small and the average-sized person, and desire to assist in these matters.
Little
People's Research Fund is
the only health organization in the world supporting research for the special
medical needs of Little People - people affected with dwarfism
LPA Parents'
Forum Online Newsletter for parents of dwarf children.
Lyhytkasvuiset-
Kortväxta International Correspondent Little People
of Finland
MAGIC Foundation
A national non-profit organization dedicated to serving children and adults
of short stature. Alternate Contact: Mary via email mary@magicfoundation.org
Metatropic
Dysplasia Dwarf Registry The Metatropic Dysplasia Dwarf
Registry is a group comprised of parents and adults with Metatropic Dwarfism
who have united to form a self-help group for the purpose of mutual support.
The Registry collects and exchanges information about metatropic dwarfism,
which is a very rare form of dwarfism. The Registry seeks to gather information
that will help affected individuals, their families, and physicians. Established
in 1980, the Metatropic Dysplasia Dwarf Registry was formed to collect
data and case histories from families with metatropic dwarfism. To this
end, the Registry distributes a detailed registry questionnaire for the
purposes of gathering information, networking, and mutual support. A list
of physicians who are specialists in care and treatment of people with
dwarfism is also available from the Registry.
Morquio’s
Support Group
National Mucopolysaccharidoses
(MPS) Society Works with Morquio, Hurler and related
syndromes. Dedicated to serving parents through networking, physician referrals
and professional publication education.
New Mobility's
Interactive Cafe Internet community on the web for disability
news, resources, and culture.
Osteogenesis Imperfecta
Foundation Voluntary national health organization dedicated
to alleviating problems with osteogenesis imperfecta. Provides information
to families and medical professionals. Coordinates a parents' network.
PrimordialDwarfism.coma
site dedicated to educating and supporting families affected by Primordial
Dwarfism
Restricted Growth
Association (RGA) To provide information and support
to improve the quality of life for persons of restricted growth.
To encourage and support the complete integration of people of restricted
growth within the wider community. To provide information and support to
help lessen the fear and distress of families when a child with restricted
growth is diagnosed. To promote wider public awareness for increased understanding
of restricted growth. To promote research into matters related to restricted
growth.
Short Statured People
of Australia (SSPA)
Short Statured
People of Australia - New South Wales (SSPA - NSW)
Spondyloepiphyseal
Dysplasia (SED) and Spondylometaphyseal Dysplasia (SMD) Page!This
web site is designed to provide information about these medical conditions,
in clear understandable English. Its purpose is to give people with these
rare skeletal dysphasia the information they need to be able to get quality
care as well as to provide the tools they need to do their own research.
Teen LPA Today's
Web Page a resource for teens
Turner
Syndrome Society of the United States Comprised of women
and girls with Turner Syndrome, and their families. Fosters research. Provides
information to parents, public and medical educators who seek to improve
quality of life. |
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Created
& Designed by Judi Coats (Updated on January 7th, 2006)