Huntington's Disease
Caring for People with
Huntington's Disease This page from the Kansas University
Medical Center Department of Neurology deals primarily with issues of patient
care and management. This is a very informative page and includes many
links to outside resources too.
Caring
for People with Huntington's Disease
CureHD.com is Jim
Pollard's ever growing, wonderfully creative site. A must see for anyone
wanting to learn more about how th epublic perceives HD and the beginnings
of what is now the HDSA.
Current
Scientific Findings & Articles Current articles on
research for all of the neurological diseases.
Facing
Huntington's Disease There are many difficult issues
surrounding dealing with HD on a day to day Basis. Facing Huntington's
Disease is an excellent pamphlet published by the Huntingtons' Disease
Association in the U.K. This is a very "user friendly" source of information
HD Lighthouse
This is one of the most frequently updated HD pages on the internet. Research
and news stories are often found here first.
Hope
Through Research From the National Institute of Neurological
Disorders and Stroke (NINDS)
Huntington's Disease Advocacy Center
is a wonderful new site by HD Families for HD Families. Their
goal is to "discuss ways of providing help to caregivers, families, and
patients with Huntington's Disease (Phds)." This is an outstanding site
that grows daily. This is a must visit often site and extremely well done.
Kudos to Christy, Marsha and Cristy.
Huntington's Disease
Information Set up by Renette Davis, this is a
comprehensive page dealing with Huntington's Disease. Whether you are a
person with HD, at-risk, a caregiver, or simply looking for information
about the subject, this is a great starting point. Some of the highlights
include a wonderful bibliography, a large list of links, and a page devoted
to stories and poems by people who are in some way associated with Huntington's
Disease.
Internet
Resources for Huntington's Disease
Mailing
List for Huntington's Disease Instructions for
subscribing to the electronic discussion group for Huntington's Disease.
Web of Care Has
lots of information about Huntington's Disease including a reading list,
Q & A, Ask the doctor and more. |
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Created
& Designed by Judi Coats (Updated on January 7th, 2006)