Rett Syndrome
Association
Française du Syndrome de RETT (French) the
French Rett Syndrome Association
Australian
Rett Syndrome Home Page was established in 1993
to set up a facility for population based research in Australia. Research
elsewhere has often been based on case series which are not necessarily
representative of the underlying population
Belgian Rett
Syndrome Association(Flemish) Deze website staat ter
beschikking van al wie in België begaan is met de problematiek van
het Rett syndroom. Bovendien wil ze de internationale Rett gemeenschap
dienen door het samenstellen en bijhouden van een zo compleet mogelijke,
vrij toegankelijke, Online Rett Syndroom Bibliografie
Cure Rett
Now a plethora of Rett Syndrome resources: medical facts,
related disorders, online Rett Syndrome newsletter, research, parent groups,
etc.
Great Mississippi
River Race for Rett Syndrome, 2001 During the following
days and nights, physical and mental endurance will be taken to the extreme
while attempting to paddle 2,348 miles nonstop to the Gulf of Mexico in
world record time. However, setting a time record isn't the sole focus
of this epic journey. Participating teams, together with families from
across the country, will be raising public awareness and over one million
dollars for bio-medical research funds for Rett syndrome, a rare and devastating
disease affecting thousands of little girls and young women.
International
Rett Syndrome Association
International
Rett Syndrome Association (IRSA) (English, French,
Dutch, Italian, Portuguese, Spanish) The mission of the IRSA is to support
&encourage medical research to determine the cause and find a cure
for Rett syndrome, to increase public awareness of Rett syndrome, and to
provide informational and emotional support to families of children with
Rett syndrome.
Japan
Rett Syndrome Association (Japanese)
Our Rett
Syndrome Page this site was developed and is maintained
by mother who has a daughter with Rett Syndrome
Rett's
Disorder
Rett Syndrome
Association UK a charity dedicated to the promotion
of the welfare of girls and women with Rett Syndrome
Rett Syndrome
Network a resource for research, parents, siblings, fundraising,
etc.
Rett Syndrome Research
Foundation is devoted to driving and funding cutting
edge research on Rett syndrome: updates, and how parents can help
Síndrome de Rett
en España(Spanish)
Swedish Rett Center
the Rett Center in Frösön, Sweden |
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