Spina
Bifida & Hydrocephalus
Able
Project The Able Project will utilize
the power of the World Wide Web to: Empower people with disabilities. Help
them learn about the available assistive equipment that include specialty
designed computer keyboards, speech software, wheelchairs, scooters, commode
chairs, bathing aids, modified vehicles.
Adult-Onset
Hydrocephalus The two most common forms of adult
hydrocephalus are hydrocephalus ex-vacuo and normal pressure hydrocephalus
(NPH)
Arbeitsgemeinschaft Spina
Bifida und Hydrocephalus e.V. (German)
Asociacion
de Espina Bifida de Madrid (Spanish)
Associazione
Piemontese Spina Bifida e Idrocefalo (Italian)
Birth Defect
Research for Children non-profit
organization that provides parents and expectant parents with information
about birth defects and support services for their children. BDRC has a
parent-matching program that links families who have children with similar
birth defects. BDRC also sponsors the National Birth Defect Registry, a
research project that studies associations between birth defects and exposures
to radiation, medication, alcohol, smoking, chemicals, pesticides, lead,
mercury, dioxin & other environmental toxins.
Children
with Spina Bifida a resource page for parents
Dandy-Walker
Syndrome NINDS Dandy-Walker Syndrome
Information Page
Establishing
the Physiology of Syringomyelia This study is currently
recruiting patients. Condition: Arnold Chiari
Deformity , Hydrocephalus,
Syringomyelia
FAQ
Hydrocephalus
Hydrocephalus
(Swedish)
Hydrocephalus
Association provides support, education, resources and
advocacy for individuals, families and professionals
Hydrocephalus
Center This Center has been created especially
for those with hydrocephalus and their families.
Hydrocephalus
Foundation, Inc. (HyFI) dedicated to providing
support, educational resources and networking opportunities to patients
and families affected by hydrocephalus. The Foundation also promotes related
research and facilitates the training of healthcare professionals to improve
patient outcome.
Queensland Association
for People with Spina Bifida or Hydrocephalus the
target group for the SBH Queensland is people who have Spina Bifida,
Hydrocephalus, other neural tube defects and their families and/or caregivers
Maternal
Hydrocephalus page Presents the results of an ongoing
study on pregnancy in women with shunts, and includes contact information
for women wishing to become part of the study.
Pediatric
Neurosurgery - Spina Bifida
Problems
Commonly Associated with Hydrocephalus
Spina Bifida Association
of America their mission is to promote the prevention
of Spina Bifida and to enhance the lives of all affected.
Spina Bifida
& Hydrocephalus Association of South Australia
is a charitable organization that was formed in 1965 by a group of parents
of children born with Spina Bifida. Over the years we have developed a
wide range of services aimed at improving and preserving the quality of
life of children and adults with Spina Bifida and their families.
Spina Bifida &
Hydrocephalus Austria (Austrian)
Spina
Bifida Fact Sheet Sept 2002 A publication of the National
Information Center for Children and Youth with Disabilities
SpinaBifida.Net offers
free information about Spina Bifida, Hydrocephalus, physical disabilities,
special needs children, latex allergies, physically challenged teens, folic
acid, plus personal stories from people with Spina Bifida
Why
Folic Acid is So Important Folic acid, also known
as foliate, is a B-vitamin that can be found in some enriched foods and
vitamin pills. If women have enough of it in their bodies before pregnancy,
this vitamin can decrease the risk for neural tube defects (NTDs),
which are birth defects of the baby's brain (anencephaly) or spine (spina
bifida). |
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Created
& Designed by Judi Coats (Updated on January 7th,, 2006)